Claire one year ago...before we knew
Claire 2 weeks ago
Today we had an appointment with a Pediatric Neurologist at Primary Children's Hospital and I am happy to report that all was well. I have been trying for about 10 months to get into this Dr. that I had so many people tell me was great and I just want to tell you that he was as good as people told me. If any of you have a need for a pediatric neurosurgeon/neurologist Dr. Filloux is the one to go to!
He spent 45 min with Kent and I looking over all of Claire's MRI's from last year and explained exactly what he thought she would be capable of doing and why certain things were happening. Can I just tell you how great it was to have someone who really knows the field explain to us about our daughter! AMAZING! He told us a couple of things that just brought a smile to both our faces. One is that he thinks she will be able to speak all in good time. He is not 100% sure as nothing is certain with the brain but he thinks that because of the size of the hole the other side of her brain (the side with the language) is probably overworking to compensate so the things that should be coming naturally such as language is just going to take longer. I am happy to wait with the idea that it will come in it's own time. He also said that the part of her brain that controls cognitive thinking such as learning disabilities, reading, etc. is totally fine and that as long as her speech develops then she should be good to go to "regular" school. (I put it in "" because come on, is there ever anything regular?)
Another good thing he told us is that she is at low risk to have seizures as the hole is inside the brain and not on the outside. What a RELIEF!!!! In all it was such a great appointment and I can't say that for every appointment that we have had on this journey but the good ones make it worth all the bad ones.
In all to sum it up this season has been a season of tiny miracles in our life and this appointment and the info we were given would be one I would chalk up on that board of miracles! Merry Christmas everyone! Hope your season has tiny miracles scattered throughout as well.
