Saturday, May 23, 2009

Groundhog Day!



I realize that I haven't written in awhile and I don't really know why. I guess it is because life is a tad bit crazy and also it feels like groundhog day every day.

I am still loving having four kids and realize how lucky I am to have 2 girls and 2 boys. Thankfully everyone has someone to play with and keep them company! Emma and Claire work great together and the boys get cranky when they are not together! So that leaves me with a day that keeps on going and going and going with feeds, naps, diapers, getting kids dressed, combing and doing girls hair (multiple times a day!!!)washing bottles, picking up all day long it seems and the list keeps going. I know all you mom's out there understand our life and day!!! I guess that is why I haven't written lately. There are some things I want to update on. Beware...this is a long post so you can stop reading now if you want. I won't be offended!:)

Emma has officially gotten to start the right hand twinkles on the harp! That might not seem like much to most of you but honestly, it has been a year of left hand twinkles before this day has come. I am so proud of her and realize that it is not about the amount of pieces she learns, it is about the skill of sticking with something and learning that I am happy about! She also finished her first year of preschool and is asking daily when she can go back. I hope this enthusiasm keeps up when real school starts!

Claire is starting to string words together. Now you have to tell her everything to say but she is mimicking everything and that gives Kent and I so much hope! Hope that she will one day be able to speak for herself and that she might be able to communicate like everyone else! I have had a little bit of a realization with her this past week. I am so used to her disabilities that I don't really even notice them anymore but this past week we started a little mom and tot gym class with just "regular" kids. This little class once again brought home to me the reality of her weakness's that I had forgotten and made me realize that I have no clue as to the future of my sweet little girl! It all hit home when they asked the kids to wiggle their toes and she was wiggling away her right foot like normal while her left just sat there. Such a simple thing that I take for granted and yet it made me remember the bumpy road we have ahead. I just hope I am up for those challenges that are to come with her socially. Who knows?!

The boys are doing awesome! They are both now about 6 1/2 pounds and are sleeping pretty well. Other than the fact the Mack's heart medicine is very hard to come by (long story!). He has not had any episodes and for that I am truly thankful! We had his first cardiology appointment this past week and I asked him what I should do if he has an episode. He calmly told me that if he has an episode that lasts 30min or longer to take him to Primary Children's ER. Lovely! He said don't bother with any other ER because they won't have a clue what to do with him and his condition. Again...Lovely!:) Morgan is such a little sweetheart and he and Mack are just such great blessings in our lives.

I have asked myself this past week many times what it was like to have healthy kids that didn't have specialist, meds, a billion appointments etc.? I realized though that with all the appointments and time spent going there I get the opportunity to spend quality alone time with each child. I get the opportunity to have these challenges and I just hope that I am learning the lessons I am supposed to be learning.
I once had a harp teacher in London who said that if you didn't learn the lesson that you were supposed to the first time, then the opportunity to learn it would keep coming back until you learned what you needed to. I thought that was only about hand position and music.:) I think my life right now is a bit like groundhog day...these trials will keep coming back until I learn what I need to. Wasn't that the gist of the movie with Bill Murray? It has been a long time and unfortunately I don't have the time to watch again! Have a great holiday weekend!

11 comments:

Circe said...

It's so great hearing about all your kids. I saw the girls the other day at Sarah's and they were so cute! Xanthe says she has her own Emma now. (Ari has a friend named Emma too) Congrats on all the milestones from all sides. I loved your Twinkle comment! If we can just teach them to love it and stick with it, that's half the battle, right?

Jennie said...

Maria - I loved your post. As you can imagine, I relate to everything you said. Those moments when our sweet kiddos are placed side by side with "typical" kids are or can be difficult. But what you said is SO true. It is holding on to the hope that truly gives you power to move through it and progress. Another thing Ryan and I do when things get challenging is to reflect upon how far we have come. Jackson is now 8 and speaks sometimes more than we would like him to at times. :) Oh what a distance we are from the days of PECS and signing time. It will come... It will come... This is not to say C and J are exactly the same. Each child progresses at different rates, but the hope and reflection theories both apply. Good luck and I hope you guys are getting at least a little bit of sleep.

Lillibet said...

Maria, we loved seeing you, Claire and the boys on Wednesday. You have your work cut out for you, but you also have a great attitude and it will be fine no matter what!

I am glad that you are taking the time to post to your "journal" and afford yourself a few minutes of reflection. It will mean a million times more in a few years.

XXOO Aunt Liza

miccolene said...

Hey Maria! I'm so glad the boys are both doing well and growing. You are one busy mama and I know you are rocking it!

So excited for Emma and her twinkles! That is such a big deal. I bet she looks so adorable with that little harp.

Thanks for the info on the strollers and the car seat. I think we are going with the peg, mostly so we can get the travel system stroller, it just makes sense.

SSWS said...

love the photo of M&M in the Phil and Teds. Genius.., can Clair sit in the bottom? Claire's smile makes up for all the weak left toes....and she is smart as a whip. And Happy Day that Emma is on to more Twinkles....love you all! ss

cragun family said...

I just love reading your posts. I am glad everyone is doing well. You are an amazing mom. I look up to you. I don't know how you are doing all that you are doing, and being so positive about everything! The pictures of the twins so close together warms my heart. What a sweet bond. Your a beautiful family!

Paige said...

Maria, so good to "meet" you, I love Sarah so much and of course love to hear about her fam. Congrats on your twins!!! You have a gorgeous family. Mine are 7 and still a huge handful but so much fun. Loved the groundhog day thing- it's totally like that with little kids but once you learn the lessons you need to from your groundhog day they get older and you learn a new lesson, you know???

Rachel said...

I completely relate to Groundhog day!! I remember how some days literally blurred into each other! But you sound amazing and I cannot imagine the juggling involved in your life, I'm exhausted thinking about it!! I love your attitude though. You are quite the woman !

mitch and amy said...

I really don't know how you do it! Just one is giving me a run for my money. I need to come by and see them. All FOUR of them!

Sarah and Trent said...

Oh wow Maria. no worries, I read your WHOLE post! I didn't stop. :) You are in my prayers you SUPER mom. wooooeeee when you say that all us moms out there know what you're talking about--- I definitely think you have QUITE the busiest life of all! You are amazing to me, if anyone can do it-- it's you!

Karin Stephens said...

I love the picture of the twins together. Do they love being together all the time? Your kids are too cute and precious!

Karin